Archive | June, 2013

Chemotherapy Week 9; Family Outing

28 Jun

Chemo started later this week. Normally my checkin is scheduled for around 9:00 AM. This week I didn’t need to arrive until 10:30 AM because my oncologist was doing rounds down in the main hospital. However, once we did arrive I checked in like normal and proceeded to have my vitals taken. When the nurse went to put in my IV she searched my hands for a possible vein. In the end she decided to leave my hands alone and actually insert the IV right above my elbow. I found this very surprising considering that I knew the nurses weren’t allowed to insert at the elbow with a chemo as toxic as Vancristine. I guess right above the elbow is okay! I did, however, find having the IV right above my elbow much more uncomfortable.

Here you can see the nurse putting the IV in right about my elbow instead of in my hand.

Here you can see the nurse putting the IV in right about my elbow instead of in my hand.

As I was leaving the room where the nurse inserted the IV I asked how long it would be before I saw my oncologist. They told me that there was only one person in front of me. However, she wasn’t even back from the main hospital yet. I sat down and the waiting game began. Eventually the nurse practitioner in training came over to let me know that my oncologist was running quite late. However, she said that she’d be able to do my examination if I’d like as to speed up the process. I hopped on this offer knowing she is a very thorough nurse and that I’d be willing to do anything to get things rolling.

When we went back to the examination room she asked if I’d be willing to allow her supervisor to sit in on the exam. Still being in training she had to have her supervisor look in on an exam. I was totally fine with this; I knew she’d be great. The exam began like normal and about halfway through my normal oncologist arrived. It was an oncology party! There must have been about five people in the little exam room. One of the things that was different about this week was that some of my counts had dropped more than I’d previously seen from the week beforehand. We talked about them and made sure there wasn’t anything to worry about. The nurse let me know that even know my counts had dropped, they were still extremely high and there was nothing to worry about.

That’s when I went back to the day hospital to begin my treatment. This week I was also given an anti-nausea patch along with the Zofran and the Ativan. Another difference in this week’s treatment was that my mom and brother accompanied me during treatment instead of my father. It was really great for them to be there with me and to see what the whole process is like. It became really obvious that I had really mastered the whole process. Being with family members who hadn’t been through the process meant that I really took the lead. I knew this process well! I have it down! The number of people I knew at the hospital also really stuck out. I knew tons of people around the hospital who were greeting me and checking it. At that moment one thing became apparent; I was no longer a beginner to this whole process. I’m a regular now. During the chemo one of the social workers came to talk to my family and I to discuss any possible changes that I’d like to see in the future. They wanted some feed back and I really thought it was awesome that they’re always looking to improve.

As always, if you have any questions let me know. Thanks for reading.

-Josh

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Chemotherapy Week 8; IV Issues

23 Jun

This week was almost exactly the same as last week except for one major exception. I arrived and checked in like normal, then nurses took my vitals. However, issues occurred when my nurse went to put in my IV. Unlike other days the nurse couldn’t find a vein for the IV. She searched my hands using tourniquets and hot packs, however she couldn’t find any obvious veins. She even searched my arms which is something they hadn’t previously done. They couldn’t go in at my elbow because apparently that’s very risky with the highly toxic Vancristine.

Finally the nurse chose a vein in my left hand that seemed to be somewhat hidden, however, she thought it would do the job. She wanted to use my left hand because my right was still bruised from the previous week and she wanted to give it a chance to recover. As soon as the needle pierced my hand the vein seemed to vanish. The nurse began “digging” around in my hand attempting to find the vein. Halfway through this process another nurse, looking to use the room to put in another patient’s IV, came in. After some more “digging” the other nurse took over. She was able to pierce the vein, however, when the IV went into the vein hardly any blood came out. The nurses decided that because the Vancristine is so toxic, and that the vein wasn’t responding well, they wouldn’t be able to use it.

Finally the second nurse found a much smaller vein in my right hand, the one they wanted to give a week to recover, and was able to insert the IV. There was very good blood flow and everything was working well. However, because the IV was in a much smaller vein I could easily feel it and it was slightly more irritable.

After waiting about an hour and a half, I met with my oncologist. I began talking with her about my vein and the possibility of getting a port. As I’ve said before, I really wanted to avoid getting a port. I didn’t want to have another surgery. However getting a port now seemed inevitable. I knew that if I had to get a port,then I just wanted to get it over with. My oncologist encouraged my dad and I to wait two more weeks until the intensive period was finished. She encouraged me to do so because once the intensive was finished, and I had my next MRI, we would know more about how the tumor is reacting. We decided that if this form of chemo was working, then it would be a good idea to receive a port. However, the reason she was having me wait was if this form of chemo wasn’t working. If this form of chemo is not working, then I would only have to get an IV every two weeks and getting a port might be pointless. The rest of the chemo in the second option would be administered orally.

Later on that day when I was in the day hospital, the nurse who put in my IV stopped by. She said that she overheard my discussion with the oncologist and that she thought I would be able to make it through another two weeks. She said that even know putting in my IV was painful, they didn’t even need to call in the IV specialists. I actually found this reassuring because I imagined that putting in the IV was more frustrating for my nurses than it was for me. I guess not!

So now I’m waiting. Hopefully the chemo is working. If it is then I’ll be getting a port before the maintenance period starts. Sorry I was a little late posting this week. As always if you have any questions or anything you’d like to hear about, please let me know.

-Josh

Chemotherapy Week 7; Back to the Carboplatin

15 Jun

Well unfortunately after having two very manageable doses of chemo, I had to go back to the full regiment this week. Just like every other week we arrived at the hospital where we checked in and then the nurses proceeded to take my vitals and give me my IV. However, the most “painful” part of the day was waiting to meet with my oncologist. My dad and I had to wait for just over two hours to see my oncologist! We never mind waiting, because it just means that she is being very thorough, however it just makes the day even longer and more tedious.

Finally when I met with my oncologist she let me know that my blood counts were looking amazing. The only thing that was different about my normal examination was that my reflexes were totally gone! The previous week it because obvious that my reflexes were declining, however, this week they were totally defunct! The oncologist said that with most people they come back, however, even if they didn’t as long as I had full control over my feet then I would be fine.

The biggest thing that was different about this week’s treatment, was that my oncologist added Adivan to my regiment. Adivan is a drug normally used as anxiety medicine. However, in my situation it’s used to prevent nausea. The logic behind using Adivan is that the nausea I feel each week isn’t actually coming from my stomach, it’s coming from signals in my brain. Therefore, if I can use a drug like Adivan to calm my brain down I’m less likely to experience nausea.

Once I finally went back to the day hospital I received the Zofran first and the nurses warned me to eat my lunch before the Adivan was in my system. I ate my lunch as I was told. Next thing you knew, I was out! The Adivan put me straight to sleep! When I next woke up, the chemo was done for the day!

It was an average day, we arrived at the hospital at about 9:20 AM and left at 3:00 PM. I am very happy knowing I only have three weeks left in the intensive.

Today, the day after I had the chemo, I woke up in the morning feeling rotten. As a result, hoping to deal with the nausea, I took a Zofran and a Adivan. The Adivan caused me to fall asleep around 8:30AM and I didn’t wake up again until 2:20 PM! That medicine works wonders! I also woke up feeling much better than I was feeling when I feel asleep. Sleep is magical.

As always if you have any questions, please feel free to ask! I really appreciate all your support!

-Josh

Chemotherapy Week 6; Quick & Easy!

7 Jun

This week’s round of chemotherapy was the fastest yet! This was a big surprise to me considering last week was so much faster than the others. This week might have been the fastest yet because I had an 8:30 AM appointment which meant that I was practically the first patient to be treated.

When I arrived at oncology we checked in and then was almost immediately taken back to have my vitals checked. As a nurse was taking my vitals another nurse popped her head in and said “once you’re done, come next door and I’ll do your IV.” This made me happy because in the past I’ve had days where they take my vitals and then I have to wait a half hour to get my IV, just prolonging the day, however that wasn’t happening this week!

As soon as I had gotten my IV I went back out into the waiting room and began using my laptop as I was expecting a long wait like the week beforehand. However, after only about thirty minutes (compared to an hour and forty-five minutes the week before) the nurse practitioner came out to come and get my dad and I. We were meeting with a nurse practitioner (in training) this week because my normal oncologist wasn’t in today. She was very nice and obviously had a very good understanding of what she was doing. It was interesting to see how being a nurse practitioner in training she did a much more thorough check than I was used to. She review everything from diet, to feeling, to reactions from the week beforehand. I found it very impressive. One thing that was different this week from my other exams was that there was an obvious decrease in my reflexes. This is something that is apparently very normal. However, I just found it bizarre!

Finally after finishing with the nurse practitioner we went back out into the waiting room for about fifteen minutes before I was called to receive my chemo. Because the treatment was expected to take no time at all (like the previous week) I was just taken into one of the rooms where the nurses put in the IVs. The chemo itself and the flush took less than fifteen minutes! New record!!! Afterwards they took out my IV and I was free to go.

Today was easily the smoothest and fastest treatment I’ve had! We were in and out in just over two hours! I have to say that I’m not looking forward to next week when I’m back to both chemos (the Vancristine and the Carboplatin) and I’ll be back in the day hospital for an all day ordeal. 😦

Thanks to everyone for reading and following my journey. If you have any questions, please feel free to ask and I’ll do my best to respond.

-Josh